Literature

References: 

The following references are part of an ever growing body of literature on this subject. They were used to inform the conceptualization and execution of the cancer communication projects in Appalachia that connected state cancer control coalitions and programs with underrepresented parts of their states.


Agency for Healthcare Research & Quality (2005).  Health care disparities in rural areas, AHRQ Pub No. 05-P022. Accessed from: http://www.ahrq.gov/research/ruraldisp/ruraldispar.pdf

American Cancer Society. (2010). Cancer prevalence. Retrieved from http://www.cancer.org/cancer/cancerbasics/cancer-prevalence

Appalachian Regional Commission (2011). Economic overview of Appalachia – 2010. Retrieved from: http://www.arc.gov/images/appregion/Jan2011/EconomicOverview-1-28-11.pdf

Arrington, M. I. (2000). “i don’t want to be an artificial man”: narrative reconstruction of sexuality among prostate cancer survivors . Sexuality and Culture, 7(2), Retrieved from http://www.springerlink.com/content/h07fk5yc2q6uwce9/  doi: 10.1007/s12119-003-1011-9

Becker, S. A., Affonso, D. D., & Beard, M. (2006). Talking circles: Northern plains tribes American Indian women's views of cancer as a health issue. Public Health Nursing, 23(1), 27-36. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=2009128516&site=ehost-live

Borrayo, E. A. (2004). Where's Maria? a video to increase awareness about breast cancer and mammography screening among low-literacy Latinas . Preventative Medicine, 39(1), Retrieved from http://www.sciencedirect.com/science/article/pii/S009174350400177X doi: 10.1016/j.ypmed.2004.03.024

Carlick, A., & Biley, F. C. (2004). Thoughts on the therapeutic use of narrative in the promotion of coping in cancer care. European Journal of Cancer Care, 13(4), Retrieved from http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2354.2004.00466.x/full  doi: 10.1111/j.1365-2354.2004.00466.x

Chelf, J. H., Deshler, A., Hillman, S., & Durazo-Arvizu, R. (2000). Storytelling: A strategy for living and coping with cancer. Cancer Nurs.  23(1):1-5.

Charon, R. (2006). Narrative medicine: honoring the stories of illness. New York, NY: Oxford University Press.coping with cancer. Cancer Nursing, 23(1), 1-5. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=2000015706&site=ehost-live

Chou, W.Y., Hunt, Y., Folkers, A., & Auguston, E. (2010). Cancer survivorship in the age of youtube and social media: a narrative analysis. US National Library of Medicine, Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/21247864

Chung, D. S., & Kim, S. (2007). Blogging activity among cancer patients and their companions: uses, gratifications, and predictors of outcomes. Journal of the American Society for Information Science and Technology, 59(2), Retrieved from http://onlinelibrary.wiley.com/doi/10.1002/asi.20751/pdf  doi: 10.1002/asi

Cohen, M. Z., Ferrell, B. R., Vrabel, M., Visovsky, C., & Schaefer, B. (2010). What does it mean to be an oncology nurse? Reexamining the life cycle concepts. Oncology Nursing Forum, 37(5), Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/20797948

Crogan, N. L., Evans, B. C., & Bendel, R. (2008). Storytelling intervention for patients with cancer: Part 2 – pilot testing. Oncology Nursing Forum, 35(2), 265-272. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=2009860127&site=ehost-live

Crossley, M. (2003). ‘Let me explain’: narrative employment and one patient's experience of oral cancer . Social Science and Medicine, 56(3), Retrieved from http://www.sciencedirect.com/science/article/pii/S0277953601003628 doi: 10.1016/S0277-9536(01)00362-8

Cueva, M., Kuhnley, R., Lanier, A., & Dignan, M. (2005). Using theater to promote cancer education in Alaska. Journal of Cancer Education, 20(1), 45-48. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=2009190070&site=ehost-live

Dorgan, K.A., Hutson, S.P., Gerding, G., & Duvall, K.L. (2009). Culturally tailored cancer communication, education and research: The highways and back roads of Appalachia. Preventing Chronic Disease, 6(2). PMCID: PMC2687874

Eadie, D., MacKintosh, A. M., MacAskill, S., & Brown, A. (2009). Development and evaluation of an early detection intervention for mouth cancer using a mass media approach. British Journal of Cancer, 101(2), Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/19956168

Evans, B. C., Crogan, N. L., & Bendel, R. (2008). Storytelling intervention for patients with cancer: Part 1 – development and implementation. Oncology Nursing Forum, 35(2), 257-264. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=2009860126&site=ehost-live

Frank, A. (1995). The wounded storyteller. Chicago: The University of Chicago Press

Freeman, M. (1991). Therapeutic use of storytelling for older children who are critically ill. Children's Health Care: Journal of the Association for the Care of Children's Health, 20(4), 208-215. Gibson, L. M. (2008).

Goers, E. (2010). Cancer survivors discover the power of blogging. National Cancer Institute Cancer Bulletin, 7(14), Retrieved from http://www.cancer.gov/ncicancerbulletin/071310/page7

Gibson, L. M. (2008). Teaching strategies to facilitate breast cancer screening by African-American women. Journal of National Black Nurses' Association, 19(2), 42-49. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=2010337276&site=ehost-live

Halverson JA, Ma L, Harner EJ (2004). Cancer mortality in Appalachia. An analysis of disparities in health status and access to health care in the Appalachian region. Washington (DC): Appalachian Regional Commission; 2004.Retrieved from: http://www.arc.gov/research/researchreportdetails.asp?REPORT_ID=82

Harter, L. (2010). Storytelling in cancer contexts. Communication Currents, 5(5), Retrieved from http://www.natcom.org/CommCurrentsArticle.aspx?id=2147483740

Hirshberg Foundation for Pancratic Cancer Research. (2010). Prognosis of pancratic cancer. Retrieved from http://www.pancreatic.org/site/c.htJYJ8MPIwE/b.891917/k.5123/Prognosis_of_Pancreatic_Cancer.htm

Hoybye, M., Johansen, C., & Tjørnhøj-Thomsen, T. (2005). Online interaction. effects of storytelling in an internet breast cancer support group. Psycho-Oncology, 14(3), 211-220. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=2009093104&site=ehost-live

Hutson, S.P., Dorgan, K.A., Phillips, A.N., & Behringer, B. (2007). The mountains hold things in: The use of community research review work groups to address cancer disparities in Appalachia. Oncology Nursing Forum, 34 (6), 1133-1139. Doi: 10.1188/07.ONF.1133-1139

Juhn, G., Eltz, D., & Stacy, K. (2007, March 14). Breast cancer prognosis. Retrieved from http://www.healthcentral.com/breast-cancer/chemo-000006_6-145.html

Krebs, L. U. (1997). Recreating harmony: Stories of native american women surviving breast cancer UNIVERSITY OF COLORADO HEALTH SCIENCES CENTER). , 211 p. (UMI Order PUZ9728063.) Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=2000021280&site=ehost-live . (2000021280)

Krueger, A. (2008, December 03). How blogging is good for your breasts. Retrieved from http://www.health.com/health/condition-article/0,,20243755,00.html

Kreuter, M.W., Gree, M.C., Cappella, J.N., Slater, M.D., Wise, M.E., Storey, D., Clark, E.M., O’Keefe, D.J., Erwin, D.O., Holmes, K., Hinyard, L.J., Houston, T., & Woolley, S., (2007). Narrative communication in cancer prevention and control: A framework to guide research and application. Annals of Behavioral Medicine, 33(3), 221-35. PMID: 17600449 doi:10.1080/08836610701357922

Kreuter, M.W., Holmes, K., Alkaraz, K., Kalsean, B., & Rath, S. (2010). Comparing narrative and informational videos to increase mammography in low-income African American women. US National Library of Medicine, Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/21071167

Krietemeyer, B. C., & Heiney, S. P. (1992). Storytelling as a therapeutic technique in a group for school-aged oncology patients. Children's Health Care: Journal of the Association for the Care of Children's Health, 21(1), 14-20.

Larkey, L. K., & Gonzalez, J. (2007). Storytelling for promoting colorectal cancer prevention and early detection among Latinos. Patient Education & Counseling, 67(3), 272-278. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=2009642590&site=ehost-live

Larkey, L. K., Lopez, A. M., Minnal, A., & Gonzalez, J. (2009). Storytelling for promoting colorectal cancer screening among underserved Latina women: A randomized pilot study. Cancer Control: Journal of the Moffitt Cancer Center, 16(1):79-81.

Livaudais JC, Coronado GD, Espinoza N, Islas I, Ibarra G, Thompson B. (2010). Educating hispanic women about breast cancer prevention: evaluation of a home-based, promotora-led intervention. Retrieved from http://www.ncbi.nlm.nih.gov.ezproxy.etsu.edu:2048/pubmed/20849288

Mah, M., Stott, M., Montgomery, M., & Bush, K. (2005). On jumping outside the box: Infection control education for the 21st century. Canadian Journal of Infection Control, 20(2), 80. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=2009023150&site=ehost-live

Mathieson, C. M., & Hendaikns, J. S. . (2008). Reneotiating identity: cancer narratives. Sociology of Health and Illness, 17(3), Retrieved from http://onlinelibrary.wiley.com/doi/10.1111/1467-9566.ep10933316/abstract  doi: 10.1111/1467-9566.ep10933316

McEntyre, M. C., 1949-. (1995). A place to put the pain: Three cancer stories. Literature and Medicine, 14(1), 87-104.Retrieved from http://muse.jhu.edu/journals/literature_and_medicine/v014/14.1mcentyre.html

Mulcahy, R.P. (2006). In Abramson, R.  & Haskell, J. Encyclopedia of Appalachia, pp. 1631-77. Knoxville, TN: University of Tennessee Press.

Murray CJL, Kulkarni SC, Michaud C, Tomijima N, Bulzacchelli MT, et al. (2006). Eight Americas: Investigating mortality disparities across races, counties, and race counties in the United States. PLoSMed 3(9): e260. DOI: 10.1371/journal.pmed.0030260

National Cancer Institute, n.d. Program Summary. Retrieved from: http://ncccp.cancer.gov/About/ProgramSummary.htm

Nickerson, M., & Potter, P. (2009). Teaching breast self-examination through pantomime: A unique approach to community outreach. Clinical Journal of Oncology Nursing, 13(3), 301-304. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=2010313372&site=ehost-live

Olson, T. (1998). Blue Ridge Folklife. Jackson, MS: University of Mississippi Press.

Overcash, J.A. (2003). Narrative research: A review of methodology and relevance to clinical practice. Critical Reviews in Oncology/Hematology, 48, 179-184. doi:10.1016/j.critrevonc.2003.04.006

Pelusi, J., & Krebs, L. U. (2005). Understanding cancer -- understanding the stories of life and living. Journal of Cancer Education, 20(1), 12-16. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=2009097365&site=ehost-live

Powe, B. D., & Weinrich, S. (1999). An intervention to decrease cancer fatalism among rural elders. Oncology Nursing Forum, 26(3), 583-588. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=1999044926&site=ehost-live

Roadside Theater (n.d.). Story Circle Handbook (unpublished work). Roadside Theater, a division of Appalshop. Whitesburg, KY. http://www.roadside.org

Rosenthal, G. (2003). The healing effects of storytelling: on the conditions of curative storytelling in the context of research and counseling. Qualitative Inquiry, 9(6 915-933 ), Retrieved from http://qix.sagepub.com/content/9/6/915.abstract  doi: 10.1177/1077800403254888

Schmid, H. J. (2001). Walter matthias diggelmann--the healing effect of story telling. [Walter Matthias Diggelmann—Die heilende Wirkung des Geschichtenerzahlens] Praxis, 90(25-26), 1148-1150.

Sontag, S. (1988), Illness as metaphor. New York: Farrar, Straus and Giroux.

Stanley, P. H. (2005). The patient's voice: A cry in solitude or a call for community. Literature and Medicine, 23(2), 346-363. Retrieved from http://muse.jhu.edu/journals/literature_and_medicine/v023/23.2stanley.html

Stillwater, B., Echavarria, V. A., & Lanier, A. P. (1995). Pilot test of a cervical cancer prevention video developed for Alaska native women. Public Health Reports, 110, 211-214. Retrieved from Full Text HTML: http://ezproxy.etsu.edu:2048/login?url=http://vnweb.hwwilsonweb.com/hww/jumpstart.jhtml?recid=0bc05f7a67b1790edefcb8d5f23342c44be547bfadbef7bc417519511b1c0e87d3085242c40cbdfe&fmt=H

Strickland, C. J., Chrisman, N. J., Yallup, M., Powell, K., & Squeoch, M. D. (1996). Walking the journey of womanhood: Yakama Indian women and Papanicolaou (pap) test screening. Public Health Nursing, 13(2), 141-150. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=1996026376&site=ehost-live

Strickland, C. J., Squeoch, M. D., & Chrisman, N. J. (1999). Health promotion in cervical cancer prevention among the yakama indian women of the wa'shat longhouse. Journal of Transcultural Nursing, 10(3), 190-196. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=1999061760&site=ehost-live

Struthers, R., Hodge, F. S., Geishirt-Cantrell, B., & De Cora, L. (2003). Participant experiences of talking circles on type 2 diabetes in two northern plains American Indian tribes. Qualitative Health Research, 13(8), 1094-1115. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=2004033597&site=ehost-live

Thomas, C., Reeve, J., Bingley, A., Brown, J., Payne, S., & Lynch, T. (2009). Narrative research methods in palliative care contexts: Two case studies. Journal of Pain & Symptom Management, 37(5), 788-796. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=2010271339&site=ehost-live

Thomas-MacLean, R. (2003). Understanding breast cancer stories via frank's narrative types . Social Science and Medicine, 58(9), Retrieved from http://www.sciencedirect.com/science/article/pii/S0277953603003721 doi: 10.1016/S0277-9536(03)00372-1

Williams-Brown, S., Baldwin, D. M., & Bakos, A. (2002). Storytelling as a method to teach African American women breast health information. Journal of Cancer Education, 17(4), Retrieved from http://www.informaworld.com/smpp/content~db=all~content=a915584596  doi: 10.1080/08858190209528843

Woodgate, R. L. (2005). Life is never the same: childhood cancer narratives. European Journal of Cancer Care, 15(1), Retrieved from http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2354.2005.00614.x/abstract  doi: 10.1111/j.1365-2354.2005.00614.x

Van Der Molen, B. (2001). Relating information-needs to the cancer experience. 1. jenny’s story: a cancer narrative. European Journal of Cancer Care, 9(1), Retrieved from http://onlinelibrary.wiley.com/doi/10.1046/j.1365-2354.2000.00191.x/full  doi: 10.1046/j.1365-2354.2000.00191.x

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